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Book

French

ID: <

10670/1.gdvslo

>

Where these data come from
Alzheimer’s disease, ethics, law and citizenship

Abstract

In collaboration with the Mediterranean Ethics Space of the Timone Hospital (Marseille), the Alzheimer Ethics Research Area (EREMA Paris), the Fondation Médéric Alzheimer, the PACA Regional Health Agency, the Union Régionale des Associations Familiales (URAF PACA), the Conseil Général des Bouches-du-Rhône National audience The thread running through the book is to address the ethical and legal issues raised by the articulation of the action of the actors involved in the management of Alzheimer’s patients. This multilevel policy (municipal, departmental, regional, national and European) is one of the most innovative fields of public action in the field of health policy and a space for experimenting with new ethical benchmarks for action and evaluation. The topics addressed take into account the key moments of the care pathway: -ANNONCE OF DIAGNOSTIC. What to say? How do I say it? And then? — DIRECT BILLING AT HOME OR ENTRY INTO AN INSTITUTION. How to maintain the individual freedoms of the assisted person? How should the rights of professional carers be protected? — COACHING AND CARE. How can people be protected without undermining their freedoms? What is the ethics of care? What rules of good practice? THE END OF LIFE. Is specific support always possible?

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