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Thesis

French

ID: <

10670/1.qwb2d6

>

Where these data come from
Anthropo-systemic study of home care conditions : in the case of Alzheimer’s disease or related disease

Abstract

Today, Alzheimer's disease is one of the worst health problem in the world (World health Organisation, 2014). It is a degenerative disease which has consequences, not only on the person, but also on the family surrounding.In France, public authorities have taken in consideration these facts and prioritized services for family caregivers, for example Alzheimer plans of action. However, if the home support services seem a necessity for the couple caregiver/care-receiver, the need for support appears to be underestimated. To study the life conditions of persons with Alzheimer disease and their surrounding, four types of methodologies were used.First, a text analysis revealed that the political context in France favors home stay for people with Alzheimer disease. Then, a review of scientific texts pointed out some characteristics of caregivers’ acceptance of proposed support services. After that, a reflection on therapeutic ethics in occupational therapy pinpointed 10 specific items for a family approach to Alzheimer disease. The second methodology was a survey using the Delphi technique with 26 experts. This investigation revealed 22 conditions necessary for homecare. The third methodology used a questionnaire with 128 caregivers in the Gironde area to document the use of support services related to homecare. Statistical analysis identified five types of caregivers and the way that these persons use professional aids. Finally, the fourth methodology was life stories. Seven interviews were conducted with couples having one member with Alzheimer disease.The analysis contributes to specify the reasons related to better living at home.These findings bring a better understanding of factors that influence the decision to stay or not at home. They allow us to consider an intervention model based on the couple’s life story and the way they live. This helps us to maximise freedom of decision for life orientation.

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