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Article

French

ID: <

oai:doaj.org/article:4a8fcb607af442bf903c688c1aecb07a

>

·

DOI: <

10.4000/questionsvives.5420

>

Where these data come from
Expérience sensible, métaphores vives et soin de soi en hémophilie

Abstract

In the context of health intervention research conducted jointly by patients, hematologists and education researchers, we present the self-care pathway of Paul, a patient with hemophilia. In a biographical interview, Paul described his active prophylaxis process and more specifically how he moves from a perception that something is wrong with his body to the decision to self-care. Throughout this article, we will study the links between sub-clinical warning signs and what makes an event, visual perceptions and the different stages of learning. To do so, we rely on two conceptual anchors: the phenomenology of perception and sensitive life and the anthropology of education and training.

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